Shivam's victory over leukemia

My son Shivam's fight with Leukemia

Thursday, December 11, 2008

Official start of maintenance phase

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Today marks a very big day in Shivam's fight. He started his maintenance phase. Admittedly, it got delayed by 3 months, but so what... H...
1 comment:
Sunday, October 5, 2008

One week over...

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Today marks the one week anniversary of Delayed Intensification. Shivam has become a lot more moody and starts crying for no reason (or so w...
Thursday, October 2, 2008

Delayed Intensification - Day 4

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Day 3 went with no hitches. Almost. He saw his neighbors and wanted to go to their house to play. It took us almost 1/2 an hour to convince ...
Tuesday, September 30, 2008

Delayed Intensification - Day 2

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Everything is coming back now. The mood swings, the vomiting, pain... everything is back. I skipped giving him Bactrim today as there has be...
Monday, September 29, 2008

Delayed Intensification - Day 1

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Today is the first day of delayed intensification. Shivam did a great job of keeping his weight constant over the last 5 days since he shed ...
Wednesday, September 24, 2008

Nose tube out, again

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I thought I will blog about this fabulous event before it ends. Yesterday, Meera managed to pull Shivam's NG tube out. It was lat evenin...
Tuesday, June 24, 2008

Rush to Emergency

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Monday night was spent tossing and turning in the bed with pain and nausea. In the morning, his fever touched 101 and Urmila and Bapu rushed...
Monday, June 23, 2008

Shivam, you have grown up so fast

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Shivam had another back poke and sleepy room visit today for some chemos . Generally, these OR visits are planned for early morning so that...
Sunday, June 22, 2008

All public access to blog disabled

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I disabled all public access to the blog today. Somehow, something was not looking right. Whenever I blogged about Shivam recovering, he wou...
Saturday, June 21, 2008

Another blood transfusion today

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Shivam had another blood transfusion today. Nothing major, but we spent almost the whole day at the hospital. I have now learnt how to flus...
Tuesday, June 17, 2008

Beginning of third week of consolidation

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We are now one fourth way into consolidation phase. His counts are zero. Today is another day of heavy chemo doses and it's going to be ...
8 comments:
Wednesday, June 11, 2008

Shivam officially enters the "No contact" zone

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Shivam's blood count dipped below critical levels in Tuesday's results. Right now, he has no infection fighting ability. This is li...
11 comments:
Saturday, June 7, 2008

A brief lull

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Last few days have been mostly quiet. Quiet in the way of medical emergencies. Shivam and Meera, of course, are having a lot of fun together...
8 comments:
Wednesday, June 4, 2008

Things are slowing down

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Things are now slowing down for Shivam. He feels tired almost all the time and is sleeping a lot more than usual. His legs have also started...
8 comments:
Monday, June 2, 2008

Round 2 officially starts tomorrow

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The lab work for Shivam came out good enough today for Dr. Rabi Hanna to approve the start of consolidation phase tomorrow. Although by the...
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Thanks for charging us up

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I thought a lot on today's post title. "The day after", "Round 2 starts today", "End of the honeymoon", an...
6 comments:
Saturday, May 31, 2008

Happy Birthday Shivam

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Shivam turns three today . I am so thankful to God to be able to see this day today. A couple of months ago, this was looking like an almost...
13 comments:
Wednesday, May 28, 2008

The numbers game

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I did not realize it's been almost a week since I last posted. Time sure flies when things are going good. And vice-versa. Shivam had a ...
9 comments:
Friday, May 23, 2008

A month of celebrations

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This month is a month of celebrations. A few days ago, it was Meera's birthday. May 21st was Bapu and Mummy's anniversary. Today A...
4 comments:
Monday, May 19, 2008

Meera’s first birthday

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Meera turns ONE today. This last year has been an amazing journey with the new experience of raising two kids and working at the same time. ...
14 comments:
Sunday, May 18, 2008

A whiff of normalcy

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Last evening, the sweet, rich, flavorful aroma of Kaju Masala filled the home. We came back from a huge costco trip and everybody was hungry...
4 comments:
Thursday, May 15, 2008

Cruise Control at 45 and a minor road bump

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Last week was mostly spent in recovering. Shivam's stomach is now much more stable, although he still has loose motions and daily vomits...
8 comments:
Saturday, May 10, 2008

Day 53: A couple of smiles

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The sweet sound of laughter filled our house again today. Shivam found one of his old "gun" today and was chasing everybody with ...
10 comments:
Friday, May 9, 2008

Consolidation vs. Maintenance

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Yesterday, or rather a few days ago, we were confused on Shivam's treatment plan. Dr. Rabi and Dr. Mathews were mentioning that Shivam ...
7 comments:
Wednesday, May 7, 2008

Ding-ding: Next round starts

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The last 2 days have been mostly quiet. All of us are resting a lot and recovering our energy for the next storm. Shivam is scheduled for ...
2 comments:
Tuesday, May 6, 2008

Home run!!!

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Yes, we are back!!! After a month of fight, we are back to the base. Shivam was able to sustain a feed of 40 ml/hour and the doctors decided...
17 comments:
Sunday, May 4, 2008

Dress rehearsal today

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Shivam got up at 10 AM as I reached back with Bapu, Mummy and Meera. Urmila also got a chance to sleep for a few hours in the morning. The m...
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The countdown begins...

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At Children's hospital, the doctors rotate every 2 weeks. What it means that we get to meet a new team of attending doctors, fellows and...
1 comment:
Friday, May 2, 2008

Is that light at the end of the tunnel?

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We have been slowly climbing the mountain, navigating the dark tunnel. We can almost see the mountain top, the light at the end of the tunne...
8 comments:
Wednesday, April 30, 2008

You tell us

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They say a picture is worth 1000 words. Here are today's 6000 words.  
21 comments:
Tuesday, April 29, 2008

Shivam's first day out

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A lot has happened in the last 48 hours. I have been meaning to write the "detailed" story and got lazy. Yesterday started with ...
10 comments:
Sunday, April 27, 2008

Some backfires, but the car is moving forward

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Today was definitely a day where things moved forward. It was a day full of excitement for Shivam. Ms. Leah, his teacher from Bright Horizon...
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Saturday, April 26, 2008

Another small step

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Shivam managed to keep high fevers at bay yesterday and today. He is still having low grade fevers continuously but that's less concerni...
7 comments:
Friday, April 25, 2008

Happy days will be here again

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Friday, April 25th, 2008 : Seattle: 9:00 AM : Shivam just got off oxygen monitoring. That's a very big achievement. His pneumonia looks ...
19 comments:
Wednesday, April 23, 2008

Reflection: On cancer and me

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Going back a few decades, my mother was diagnosed with cancer when I was a little boy. I saw that horror through the eyes of a young boy who...
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Tuesday, April 22, 2008

Keep the positive energy going

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I know you all have been anxiously waiting for an update on Shivam's situation. So are we. So far it's been wait and watch for us...
12 comments:
Monday, April 21, 2008

No change

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Shivam's condition has not improved at all since the last update. I will next update you all when there is something to report.
13 comments:
Saturday, April 19, 2008

Doctors suspect infection in the gut

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The doctors suspect that his gut has infection. Although they did not find any bacterias, but they found a lot of WBC which is an indication...
12 comments:

No change

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Good morning world. No change in Shivam's situation to report. Still having consistent high fevers. Still having belly aches. No report ...
12 comments:
Friday, April 18, 2008

Soldier still in retreat mode

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Shivam's condition worsened over the last 24 hours. His belly pain has increased and his fever is now almost constant at 103. Tylenol br...
11 comments:
Thursday, April 17, 2008

The soldier took two steps back

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Last night was very rough for Shivam. His fever was constantly high and he developed extreme stomach pain. The nurses and the doctors increa...
12 comments:
Wednesday, April 16, 2008

To climb steep hills requires a slow pace at first

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As Shakespeare said, "To climb steep hills requires a slow pace at first." Our Hero is taking slow but sure steps towards the goal...
10 comments:
Tuesday, April 15, 2008

When the Going Gets Tough, the Tough Get Going!

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Shivam's numbers showed dramatic improvement today. His WBC cell count is UP, his ANC (fighter cells) are UP, his potassium is STABLE, h...
28 comments:
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Nikhil Singhal
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